My experience with the anti-inflammatory diet

About a month and a half ago, I started a new anti-inflammatory diet, the Wahls Protocol to help with my fibromyalgia symptoms. This diet was created by Dr. Terry Wahls who suffers from Multiple Sclerosis. She created this protocol by studying autoimmune disorders and brain biology. She adopted the protocol herself in order to help with her MS.

According to my understanding of the diet, the main concept is to eliminate all inflammatory foods such as grains, sugar, and other high lectin foods (like starchy foods). It's kind of a derivative of the combination of the paleo diet and the ketogenic diet. In her book, The Wahls Protocol Cooking for Life: The Revolutionary Paleo Plan to Treat All Chronic Autoimmune conditions, she talks about how staying in ketogenesis will help reduce inflammation, which will then help with pain.

At first I was very skeptical of the diet. After all, haven't we all tried something similar to help our illnesses? I'm sure most of us have tried some sort of diet to help with our symptoms before. I've tried several things to try to help my pain and none of them worked like they promised they would, so why would this one be any different? Besides, when I went to the Mayo Clinic Pain Rehabilitation Center for a month long rehabilitation program, they had told me not to restrict myself (meaning not to try any "miracle diets) because it encouraged pain behavior. However, since then, my fibromyalgia has progressed and several of my mother's doctors had suggested a low lectin diet that was almost identical to the Wahls Protocol to help with her own autoimmune conditions. So I decided that I had nothing to lose and to simply try it. I could always stop if it wasn't working.

The first few days were difficult. Not because I was craving foods that I couldn't eat, but because of intense fatigue. To this day I'm not sure if that was because of some sort of flare or if it was due to changing my diet but I have a suspicion that it was a combination of both. Since then, I have learned that sometimes when people start a ketogenic diet, they experience the "keto flu", where they experience flu-like symptoms while their bodies adjust. Because I already struggle a lot with fatigue, those first few days I could barely do anything. I mostly layed on the couch barely able to feed myself. Once this passed and I started to have some more energy, I started to get a little discouraged because I wasn't seeing a lot of improvement. My fibromyalgia pain was somewhat better but my energy was about the same. However, I did not give up. I didn't see the point in stopping the diet since it encourages you to eat healthy foods and  since I wasn't losing any weight (a good thing), I didn't see a  problem in continuing the Whals Protocol.

It's now been around a month and a half on the diet and I can say that my pain has significantly improved and that I have more energy. My fibromyalgia pain still hasn't gone away (not that I really expected it to) but it has significantly improved. I haven't suffered from painsomnia in quite a while, whereas it used to be that my back and hip pain would keep me from sleeping well at night. I also have been more active. I have actually had the energy to do my physical therapy workout almost everyday and have even started going to a dance class once a week. Don't get me wrong, this isn't a miracle cure (as far as I know, at least for me). I still struggle with pain and fatigue from fibromyalgia, it's just not as intense.

Although you still might be skeptical about this diet, I know that it has helped me quite a bit. This diet might not be for everyone but if you are intrigued by it, I suggest you look into Dr. Wahls' research and her books: The Whals Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principlesand The Wahls Protocol Cooking for Life: The Revolutionary Modern Paleo Plan to Treat All Chronic Autoimmune Conditions.

Personally, I'm continuing the diet for now and will keep you posted on any changes.

What is a spoonie?

One of the first things you hear about when looking into the chronic illness community is "spoonie". This may confuse a lot of people. You might be thinking,"What do spoons have to do with chronic illness?" This all stems from The Spoon Theory, first written by Christine Miserandino. What is The Spoon Theory? It's a disability metaphor. When people struggle with chronic illness, their energy is often limited and simple tasks like preparing a meal, taking a shower, or doing homework can take a lot more energy than for healthy people. The idea behind the spoon theory is to help people visualize their energy: the spoons represent their energy. Each spoonie wakes up with a certain amount of spoons (the amount of spoons can vary day to day) and each task they accomplish will cost them a certain amount of said spoons, which can vary from task to task. For example, I can wake up one day with ten spoons. I get out of bed and might need to give up one spoon. I make myself breakfast and give up another spoon. I get ready for the day and give up three spoons, and so on. The amount of spoons required for each task depends on both the person and the day.

Continuing my example, waking up with ten spoons and already losing five spoons so early in the day can make it easy to run out of spoons without the day being over. That's why spoonies need to prioritize their tasks and why we may not always be able to participate in social activities. Just getting through a normal day is difficult enough. A great example of the sSpoon Theory is the video game Robin. In this game, the player has to accomplish certain tasks each day with only a certain amount of energy. It is impossible to finish all of these tasks in a single day with the little energy the player is given, so he or she needs to prioritize the different tasks. For example, feeding your animal is a high priority task because a living being is depending on you. However, a spoonie might not shower everyday or do the dishes everyday.

Another important aspect of living your life as a spoonie is moderation. If you do too much one day, your body could need days or even weeks to recover. That's why, to be able to function relatively well each day, you need to moderate your activity. Listen to your body and see what it needs. If it needs a rest day, then rest, but if you're feeling up to it, try to do some activity, whether that be walking outside for a few minutes or playing with your dog. But don't do too much. Don't have a full day of cleaning the house nonstop otherwise you'll pay for it the next day.

Life with chronic illness is not easy. And it's not easy for the people around us to understand it. But spoon theory is a way for chronic illness warriors to connect with each other and for their loved ones to understand what each of us is going through. I explained spoon theory as best as I could but if you want the original post, go check out Chrictine Miserandino's website butyoudontlooksick.com. Also check out the video game Robin since playing it truly helps you understand the difficulties a spoonie faces. Jacksepticeye made a video playing this game so even if you don't want to play the game, I suggest you go watch his video: https://www.youtube.com/watch?v=fmkc8DcGTy

Hello everyone!

Hello and welcome to my blog! My name is Madeleine, I’m currently a college student studying environmental science, photography, and philosophy. I’m a freelance travel and nature photographer and even recently started my own Youtube channel (https://www.youtube.com/channel/UC8HZB-P_ASwQCpD7YfGQuCA/). I’m also a chronic illness warrior and like to raise awareness as well as advocate for invisible illness and invisible disability. However, I’m not defined by my chronic illnesses, I am still a regular person. I enjoy photography, movies, art, video games, and lots of other things! Follow my blog if you’re interested in travel and lifestyle tips with a chronic illness twist!